Month: June 2014

So Goeth the Lesson

Monday, June 30, 2014

It’s 8:52 am. I have walked the pups with Betty, fed them breakfast, and cleaned the bathroom. Busy night for mom. I get a kick out of hearing Betty say that she cleans her bathroom on Saturday. Ours gets cleaned 5 times a day! I even took Lysol to the handle of mom’s cane, and of course washed the walls to and from the bathroom. I am pretty sure I know what will await me when she gets up: change and wash her bed sheets and her nightgown and put her in the shower. Am concerned about the return of her lower back pain. Might presage an infection. We’ll see how the day goes and whether she complains. No fever. Luck might be on our side, but with such poor toileting habits and without 24-hour surveillance, it’s tough to avoid UTIs. What I want to avoid above all is sepsis. She’s been there before.

Today is Lucy’s 15th birthday. We had a challenging night, but made it through. Two potty breaks outside, but we were finished shortly after 2:00 am. I need to pick up a rotisserie chicken for her—her latest favorite food. I cut up small pieces and add a tiny bit to her kibble. Valentino likes the new addition, too. I recently stopped giving them boiled chopped beef. Thought it was too much protein for them. But a tiny bit of chicken seems to satisfy their palates and hunger for meat. Normally, I like to go to Leesport for the good chicken, but I might settle for a supermarket chicken, as Leesport market is opened only on Wednesdays.

Good week ahead. Only one meeting tomorrow evening, visit to see Ava and Butch on Wednesday, haircut on Thursday, and the Kutztown Festival on Saturday. We usually avoid the festival like the plague. It’s often too hot, but Karen, Glenn, and Lauren will be visiting. Karen and Glenn usually find things to do in our area that we ignore or overlook. Kind of like not visiting the Empire State Building when you live or work there. Should be fun at long last to do the Kutztown fair. I might even pick up some vendors for the Dreibelbis Farm Festival. Thus far, I have about 23 vendors and exhibitors lined up.

Not sure what we will do with mom on Saturday, but dear Rob gets saddled with her during the week when I am not here. It’s tough for him, especially when she talks while you are trying to talk. Mom is so used to not hearing that she does not wait for an answer. This, however, is nothing new, but a lifelong habit. She has long lived in her own private world. Years ago, an acquaintance we had met on Broadway asked me why my mother asks questions but does not wait for the answer. Instead, mom asks another question, often when the other person is answering the first question. It can be disconcerting. Multiply that by the 12 or so hours that she is awake. Rob stopped her banter yesterday as he was trying to teach her how to get off the bentwood stool and said…

Listen! Just listen!

I know. I know how to do this.

Then of course she did it incorrectly. When corrected again, she responded with an Oh yeah.

I keep telling Rob to stop trying to teach her. She cannot remember. She does not understand. But he said he had made some headway. He’s deluded each time and is dashed when she forgets the lesson.

So goeth the lesson!

Sandy!

Mom is up! My morning has officially begun. I brace myself.

Understanding

Wednesday, June 25, 2014 

Valentino is at the groomer. Things are a bit quieter than usual. But mom is up.

 Sandy!

What mom?

What time is it?

9:30

I better get up. 

My day has officially begun, even though I have been working on an editing job since 8:00 am. I try to get as much done before mom’s demands must be met. She’s in the kitchen now. I need to go to the store to buy some milk. She won’t eat eggs. Cereal is it!

 I have to go to the store. We’re out of milk.

You don’t have no milk?

I don’t have any milk.

Isn’t that funny?

Why is it funny, mom? Haven’t you ever run out of things before? 

Oh why do I argue? She’s not there. She no longer understands processes, the order of things. Go to the store and be done with it. I am off…

 

Usual Form

Monday, June 23, 2014

Company yesterday. Long-time friends whom we had not seen in too long a time. Grilled some chicken burgers and mixed veggies. Am getting better at grilling.

Mom was in usual form:

How are you? I haven’t seen you in so long?

We haven’t met before.

Oh really?

Where do you live?

In Mount Joy

Oh really?

How far away is that?

About 45 minutes

Oh really?

It’s so nice to see you again. Where do you live?

In Mount Joy

Oh. How far away is that?

 

She was fascinated by the iPhone that little Alex (one of our guests) showed her. Mom is usually initially fascinated, but never really interested. I have shown her photos on the computer, but it’s tough keeping her attention focused. When she starts saying Yeah, it’s time to move on.

I mentioned to my friend that mom lived on coffee and bagels with cream cheese for too many years. As I recall, mom was never hungry and ate far too much wheat, far too few omega fatty acids, and far too few vegetables. She is paying the price now. Actually those engaged in her care are. I read recently about a 111-year-old woman who just graduated high school. She considers herself young. She certainly must be to have studied and passed a rigorous four years of school.

I am at school, too. The school for caregivers. I am getting better at interpreting mom’s answers. Yeah, yeah means just that, and it indicates that she is not listening. Her yeah, yeahs are often spoken while you are just finishing your sentence. If you ask her to repeat what you said, she will smile weakly and say she forgot.

She is unable to focus, but there are bits and pieces of her here and there. Scattered wildly to be sure and unpredictable in delivery.

But mom can be obsessed as she is with windows and shutters, doors, the porch fan, the cat on the fan (He’s still up there. Can you believe it?), and the blinking light on the phone. All doors must be closed and locked. All windows must be closed, shutters must be closed. The porch fan must be turned off. The porch door and the kitchen door must be closed and locked. Security is important to her, even though she would invite anyone in. Mom has always preferred a lightless, airless home. But she won’t get one here. I open the shutters and the windows in her room every morning to her dismay. Sometimes I leave the windows opened at night behind closed shutters. She is adamant about the shutters: Someone is trying to get in. I saw him—even though someone would need a ladder to do so. Lights out! She cannot tolerate having a light on, even as she sits under the kitchen light working her word-search puzzles. Says it’s costing me money.

Time for a nonsequitur:

How is it out, Rob? Cold?

No. It’s around 70.

Oh that’s not bad. Yeah.

 

Mom has no clue what the temperature is. But she is obsessed with it. We don’t wear shoes in the house, and she often remarks about how I will catch a cold, particularly if I go out onto the porch without them. She has no real idea that it’s summer and would not be surprised to see me put on a winter coat or my mukluks or wind a scarf around my neck. 

Each time a person leaves a phone message, a red light blinks. Mom will ask repeatedly if someone is trying to call. She cannot hear the phone, but she can see the light. So she assumes that someone is calling. Thus, I need to clear all messages before she drives us crazy with her insistence that the phone is ringing or that someone is trying to reach us. Indeed they were!

Mom does remember people who have visited or questions she recently thought to ask.
Rob, who was that boy who was here yesterday?
He was the son of the man and woman who were here yesterday.
(Change of topic)
Did Sandy go to church?
No that was yesterday. She’s working in her office.
Oh. Good coffee, Rob.

And the current topic of the day:

Rob, where do those people live?
Mount Joy?
Oh yeah? Where is that?
Forty-five minutes from here.
Oh yeah?

Someday I will write a treatise on the many meanings of Oh yeah!

Fleeting Memories

Friday, June 20, 2014 

Pollen has been terribly high. Lucy is sneezing and I have been knocked out from it all. On top of that mom has been loading her face with some moisturizer I had given her. She does this continually, unable to remember that she has just put some on. Not only does her face become sticky, but the scent of all the cream permeates every room downstairs. Not helping our allergies. So I took the bottles of moisturizer out of her room. I shall have to replace them with something unscented.

On Wednesday evening, friends from Jim Thorpe came to visit. Always enjoy their company. I was surprised when the next day mom asked who they were. She does not normally remember an activity or a visit on the following day. I explained—and probably should not have—that she had been to their house several times before. But she didn’t remember that. I doubt she will remember their visit today.

It’s been too hot to get her outside again. As she needs sun, I will try to get her outside earlier in the day. She is terribly uncomfortable about going outside. She doesn’t like the bugs, the bees (the garden is loaded with bumblebees, or the heat. I do sit her by the umbrella so that her head is protected. Twenty minutes of sun on her legs should help her sleep well at night; however, she doesn’t seem to have any trouble most nights.

More company on Sunday. Friends we have not seen for many years. Looking forward to it and hoping mom will enjoy their company. She usually does not interact with company and often sits in her room watching television. It might be more comfortable for her to avoid situations that could be potentially embarrassing. She seems to know that she doesn’t know things or people anymore. But her discomfort is fleeting. She forgets almost immediately that her memory failed. It almost serves her well to forget.

 

 

Concrete

Tuesday, June 17, 2014 

Bad night. I awoke at 2:36 and could not get back to sleep. A bit too warm. But I walked the pups with Betty and I am at my desk now. I probably should have gotten up to work on this current assignment in the middle of the night because Mom is in the kitchen now calling me every few minutes.

Sandy? Where is she? Sandy!

What mom?

Sandy! What is that bottle doing there? It looks like milk.

It was a milk bottle, mom. I am washing it out. It’s filled with water now.

Oh, I see.

Put the light out. You don’t need it.

OK, mom. But then you’ll sit here in the dark.

That’s alright.

And where is Rob? (another favorite and oft repeated question)

He’s upstairs. I have to work, mom.

Oh, I see.

 

The only time I really have for work is when mom is asleep or when she is watching television late at night. She wants company, but I cannot give her the company she wants, sadly enough. I sit here feeling guilty, but if I don’t work, then the roof won’t be repaired, the skylight won’t be replaced, the all-house fan won’t be installed, the basement stairs won’t be replaced, the bathroom ceiling won’t be fixed… (The list is long, but not depressing. I am making dents in the work needed to be done. But mom no longer understands that I need to earn a living for her to have a comfortable place to lay her head.)

Back to my work. Well, not for long. The pups need to go out again. I was going onto the side porch without shoes, of course. The tile floor feels good against my bare feet, and I sometimes like to go “earthing” in the yard.

Mom stopped me. You’re not going out there barefoot.

Yes, I am, mom. It’s summertime. It’s hot out there.

Ooh, you can’t go out barefoot. You’ll get sick.

When I brought the dogs back in, mom asked me what the temperature was.

It’s going to be 90 degrees (a bit of an exaggeration).

Oh yeah?

Should I put on my snowshoes and my winter coat.

You can go out bare-assed! 

My mom! There she was. Buried in dementia, but vestiges of her are still alive somewhere deep inside. I relish those moments and wish they would last. But in her next breath, I am dashed.

Where’s Rob? I haven’t seen him all morning.

Mom, he already made you toast and coffee this morning.

Oh yeah? I didn’t see him. Where is he? Still asleep upstairs?

No mom. He’s in the basement getting his blueberries.

What’s he doing down there? He shouldn’t be in the basement.

Well… 

Rob came upstairs, his blueberries in a bowl.

There he is. I didn’t see him all morning.

Sigh…

Now, back to work. Oops, mom wants to go back to her room. But she first needs the sun. Coaxing her was tough. She wanted to go back to her room. She didn’t recall having sat outside the day before.

Oh, I can’t go out dressed like this.

It’s my yard, mom. It’s private

Ooh no.

Yes, mom. You’ll be fine.

She’s sitting out there now with her legs exposed to the sun and a glass of ice water in her hands. Head under the umbrella. She likes the heat. Can’t get enough of it.

I like the purple flowers, but you don’t need all of these. Get rid of them.

You mean my garden, mom? The yellow and pink and red flowers aren’t in yet. They’re just budding now.

You don’t need them.

Would you have me pour concrete over it?

Yes! It’s too much. 

So much for my horticultural efforts. I might add that I have a cousin who thinks the way my mother does. My cousin hates dirt and would like to see all country roads covered in concrete. Another cousin did just that to her yard. No dirt. Concrete. No flowers. Nothing. Just hot, reflective concrete. Sigh, again!

Rummaging!

Monday, June 16, 2014 

Had to face my reformatting job today. Twenty-five pages was the goal and I made it, but not before I got really tired from the heat. We put the A/C on. Mom would be perfectly happy without it, sitting there with her winter nightgown, down comforter, and fuzzy slippers.

 Took a break and had lunch with Barb. Nice to get out. Important, too. We even stopped for ice cream, one of Barb’s favorite desserts! A nice afternoon. 

Back home, mom was rattling things in her room. I have a table in there with three drawers. She was going through them and asking me to get rid of stuff. Twice I had to remind her that the table was mine. The things in the table were mine also. She unearthed a copper bracelet, some brass light switch plates, and some paint samples. Having nothing better to do, she decided to clean house! 

She’s calling me now to take her lunch plate. She won’t wait too long and will keep calling me until I get there. Hold on… 

OHMIGOODNESS! Mom had unearthed some light switch plates with matching screws. I kept them in the drawer in a baggie so I would not lose the screws. So she put her uneaten potato salad in the baggie and told me to throw it away. In her room, nothing is sacred!

A Day in the Sun

Sunday, June 15, 2014 

It’s 55 degrees and oh so delightful. I awoke this morning to find Valentino prone on his lovely Chippendale dog bed, aka, the couch. Took a photo and crept upstairs trying not to awaken him. Mom was asleep. Lucy and Rob were asleep. It was a wonderful morning. All is well with the world. We are together and the flowers are blooming—well, will eventually bloom. Everything is a little late this year because of the cool temps. I thank God for my blessings. I would have said “wealth,” but that’s debatable in the non-abstract sense. On Monday, I bring Greta Carbo (my Swedish car) in for some major work to the tune of $2500.00. Oh well, beats buying a new car, which I cannot do. And the hailstorm left me in need of a new roof and new gutters. The insurance company won’t cover the skylight, which must then be replaced, and I am sure they won’t cover the entire cost (minus the $500 deductible anyhow). But this, too, is a blessing. I only called the insurance company as a lark to see if there was any roof damage. Oh my! Back to the cup and pencil to raise some money. Fortunately, too, there is hope of a new job coming in this summer.

Speaking of which, I am still finishing that monster reformatting job. I have set a limit of 25 pages per day, but by the time I get in the middle of it, I can’t keep my eyes opened. I have been chalking it up to the high winds and allergies and the tedious read. During my work, mom will invariably call me and then not recall why she called. She’s lonely. I understand, but when I am interrupted mid-sentence, it’s hard for me to respond sweetly. I often wait until I have finished a section or a sentence and then see to her. She will look up confused and fumble mentally. Oh yeah, can you call my Johnny Boy. I never talk to him. Her Johnny Boy is her fallback. If all else fails, she knows where she is looking: to her Johnny Boy.

But then, when I wake up each morning, I give thanks for having had my dad as my dad—the good, the bad, and the ugly. He was a good man, and I miss him terribly. My sister-in-law once said that she was sorry my dad did not outlive my mother. Dad was more fun, always at the ready with a loaf of Italian bread and a laugh. Mom would have preferred being with her sisters than with her grandchildren—so far as we could tell. Her sisters were everything to her. I suppose growing up in a family of 10 (7 girls to 3 boys), the attachments were inevitable. Every weekend, they shopped together. I would love to tally the amount of money they must have spent over a lifetime! But then again, they bought bargains when they could. And buying bargains meant buying simply because they were bargains—whether you needed them or not.

But there is no more Cara Carsons or Minnie Kreps or David’s Chez Boutique (he apparently didn’t study French) or Mademoiselle. These were the prime stores in Bayonne and Jersey City way back when. Of course, we did most of our shopping in the city, aka, Manhattan. I miss it. Not the Manhattan of today, but the Manhattan of yesteryear. Most of the shops I loved are still there: Aquascutum, Berberry, Saks, Lord & Taylor, Bergdorff, and possibly even Worldly Things on Madison. But I practically lived at ??? and Paul ??? when I worked in New York. The former is gone and the latter is a mere shadow of its former self. L&T is not quite up to snuff anymore. Too big a mall image.

And here I am in PA, with mom and Rob and Lucy and Val, shopping online. Mom has no clue what a computer can do or does. Her stores are gone forever. So are her sisters, with the exception of Rose, whom she will probably never see again. I must show mom the flowers today. Must get her outside for a breath of fresh air now that the wind has died down a bit and the threat of rain is gone.

Mom’s cane thumps! She pokes her head into my office.
Hello! I’m going to the bathroom.
So what else is new!

This part of the morning/day is my least favorite. I don the surgical gloves, grab a wipe (and then two, or three, or four, or five) and get to work. Later I will put her in the shower. Mom is now brushing her teeth—a 5-minute process. She will end by brushing her lips, something I never observed her doing when she had all her faculties.

My mother pokes her head into my office.
Sandy, I’m going into the bed again? (The question is always there.)
Goodnight!

Mom is never quite sure anymore what she is supposed to do or where she is supposed to go. She asks where her room is, where the TV is and is always surprised to find it in her room each time. Oh there it is! Today for sure, I will coax her out onto the porch. She has forgotten that she sat out there last summer and admired the flowers. Perhaps she will admire them again this summer. Perhaps today.

Rob is in the kitchen at the laptop, trying to listen to something or other, but mom, who is doing word search puzzles, keeps interrupting. Where did Sandy go? Rob, can you find this word. Is it cold out? I keep telling him to take the laptop out onto the porch, but no. Men can be as difficult as aging mothers.

Later—

Well, we finally led mom out into the yard for a dose of sunshine. She was terrified at first. Strange to imagine that someone would not want to go outside. But she did enjoy the flowers and the view while she was out there. We raised the umbrella on the table. As she sat, I weeded. She was delighted that I finally put some socks on. I did this only to prevent my feet from getting dirty in the garden as I waded through plants.

I walked her nearly to the fence, but she resisted. Mom was upset about Valentino fleeing the yard. I tried to explain that there was a fence around the entire yard. It did not compute.

We had lunch later: I grilled organic hot dogs (a first in many, many years), homemade sauerkraut, homemade potato salad (thanks to Leora Lynn), and organic argula salad. Mom is out there now having ice cream. A nice day, peppered with Where’s Rob? Where’s the white dog? The white dog is always sleeping. Watch the black dog; he’s going to run away. Where’s Rob? I like it out here. Where’s the white dog? Is this Pennsylvania? And a resurrected oldie: How long have you lived here? She asked several times about the neighbors and said she speaks to the woman next door all the time. Of course, she doesn’t. The woman next door is rarely home. I maintain that it’s a safe house. No one is ever home. Occasionally, I see the husband—a very nice man—mowing the lawn. Although, I have seen a younger man riding his mower there, too. Lawn man? Friend? Relative? But mom swears she knows them and talks to them all the time. Actually, mom never spoke with neighbors. Not in NJ and certainly not here, but for my friends who come to visit.

All in all, a glorious day! Delicious picnic lunch! Lovely sky! Warm sun! The porch was perfect. I am grateful and happy. And it’s wonderful to have mom here. Mom, Rob, Lucia, Valentino, and Betty and Barb… All the people and creatures in the world who matter.

Image

 

Rainy Day

Wednesday, June 11, 2014 

Poured this morning. Glad I took the photo of the roses before the onslaught. Didn’t manage to get mom to stand in front of them yet. But they should perk up some when/if the sun comes out. 

Mom is in the kitchen now, beating the bejeezus out of the Cheerios. Sounds like construction work out there. I am in my office, eating my own breakfast, away from the hammering spoon, even thought I know mom would love to have company. I feel some guilt about this, but the noise is intolerable. Add to that her slurping. I know. I know. I should be more tolerant. But I remove myself from some forms of stress when I see no other recourse. 

I have already showered mom and dressed her. We are ready for our foray to the podiatrist. Am hoping to stop off at a garden center and persuade her to join me. Most of the time, she prefers to sit in the car. And today, because it’s so overcast, she might prefer not to venture out. Mom has become very skittish about going out altogether. We shall see what our venture will bring today. Last time, we stopped for pizza at Fiori’s. That was fun, but a bit too early. I think I need to make the appointments later in the day so we can enjoy a nice lunch out. Wind is picking up again. Looking gray out there. Not boding well. 

Rob just joined mom in the kitchen. It’s 0930, and mom who is usually up much later teases Rob when she can: Good afternoon, Rob. Vestiges of the old mom remain. Rob and mom spar for a bit. She enjoys it.

 

 

Class of 2014!

Tuesday, June 10, 2014

Deadlines all over the place, a sinus headache from the mold (been raining), mom in diapers, and a dog in diapers. I finally put diapers on Lucy, too. She’s been having accidents like the one she had on Sunday and then Monday morning. Getting tiring, but I have more patience with Lucy than with my mother. Mom is on the toilet again: fourth time in about 15 minutes. That’s the way it goes. But to prevent incontinence, many trips to the bathroom is the order of the day. Lead her to the bathroom, don the gloves, clean her, change her, have her wash her hands, remove the gloves, and then wash your own hands and the bathroom fixtures. I keep washing my hands, but it’s tough getting rid of the smell or feeling as if you are clean. I am still dealing with the mat to the living room carpet from Lucy’s accident on Sunday. Finally cleared the Oriental of any smells (hosed it down). Had to do the same to the mat. It’s still drying out on the porch. 

Arborists came by today to chip fallen branches, stake a tree, and trim another. One of them took home a beautiful bouquet of roses and salvia for his wife. I gave him a vase for the occasion and snipped some lovely roses and buds. Was nice to be away from my desk and away from the bathroom or down on my knees sniffing a carpet or a mat for residual urine. 

Here is a photo of my hybrid musk roses, Class of 2014! 

Image

Bridezilla!

Saturday, June 7, 2014 

Quite a day! Took a day off from editing and helped out at market for a few hours. Left early to get back in time for the wedding shower on my back porch. I had been working for weeks to clean the porch, polish furniture, get rid of spider webs, wash the tile floor, weed the garden, plant annuals among the perennials, and mulch. Rob spent the week trimming and mowing. Everything was wonderful. I tied pink and burgundy mylar balloons to the Weber grill I was giving the bride (in addition to a Kitchen Aid toaster).

Ruth came at noon to see to mom. Lovely woman. Mom had no idea who she was and claimed she had never seen her before, but this is Ruth’s third visit with mom. While mom and Ruth sat in the living room chatting, I noticed a wet spot on the antique Oriental. Lucy didn’t make it out on time. So I dragged the carpet to the yard and hosed it down. Fortunately, the sun was strong and bright. But this was a mere shadow of things to come.

Mother and bride came to my back gate on the pretext of dropping off a plant. When the bride saw the guests (around 20 of them), she refused to go onto the porch. Instead, she staged (and I don’t use that lightly) a meltdown on my front lawn, unable to breathe. Her hands became numb and a neighbor came in for some ice. A serious anxiety attack. Quite a show for mom and Ruth. (Ruth is a lovely woman at 82.) All the guests were nonplussed. No one knew what to say or do. So I suggested they start eating the food. Some went home, gifts unopened. Eventually, the bride came in, sat facing the garden, head lowered and sobbing. We all wonder how she will react to marching down the aisle while 200 people watch. We all wonder how she will react to the rehearsal dinner or to the reception after the wedding. We all wonder if she is really ready to be married.

As an aside, I suggested she take the mylar balloons home, but the bride refused: her fiancé is “terrified of balloons.” Either they will make quite a couple and see each other through these unusual fears or they will wind up in a very miserable marriage. The maid of honor was quite upset as were other members of the bridal party. They had never seen this side of the bride. Eventually, she opened her gifts, keeping her head down and her voice low.

I tell you all this because I checked in on mom and Ruth several times. Both were horrified at the actions of this young woman. The drama took quite a while to unfold. All the while, I could only think how happy I was that my mother at 97 is easier to handle than this young woman at 25. Am I becoming more patient? Not really. Just more accepting and realizing that I wasn’t dealt a bad hand in my mother. She’s a sweet woman who would not have put up with the bizarre behavior we saw today. What a world we live in. I am almost glad that mom doesn’t really know what’s going on. I think she would be seriously disheartened.