Keeping Vigil

Monday, March 6

Mom awoke late in the day. We moved her to the potty, gave her something to drink—she took two sips—and now she is back in bed, propped up with pillows and taking oxygen. We kiss mom on the forehead, allow her to rest without interruption, but Rob and I both feel as though we are not doing enough. Should we be waking her to give her something to eat, something else to drink?

The answer, of course, is no. She is winding down, and it’s tough to watch. Mom has so little energy that when she sits on the toilet, she begs to be put back in bed. If I take too long to clean her, she complains, “That’s enough. Put me back. Put me over there, Rob, please.” She tells Rob she loves him, and she is off to sleep again.

We listen to the sound of the oxygen machine, at least until she pulls the tubes off her nose. Then we get some quiet.

We are waiting and it’s tough. The inevitable is too sad to ponder, even though mom has so little left. I look at photos of her a year ago, just a few months ago in fact, and she is a profoundly different woman. Even Valentino is aware of the change. As noted before, he sometimes sleeps alongside her bed and always alerts me to her calls.

We all remain tired. There is little real rest. I wonder what we will do when we find her gone, but then I remind myself that she is still here—in a manner of speaking. Mom is really between two worlds. People remind us that we were lucky to have her so long. But I wonder. How many of those years were good years. Fortunately, there is a higher power in charge, and her lingering here is of greater moment than I will ever reckon on my own.

6 comments

  1. Your mom is tired just as you and Rob are as well. It must be so difficult to watch her decline day after day. I pray for your continued strength to help you through this trying time.

    XOXO

  2. Your diary of emotions is very poetic and should be published to help others through the caregivers journey of grief.

    1. Thank you, Tynisha. You are very kind. This diary began as a way to cope with caring for mom, but I wound up learning a bit more about myself in the process. Some of it good and some not so good. All kinds of things enter into caregiving, including negative emotions, such as impatience. But with any luck, you learn in time to sort it all out.

  3. I said all the same things to Suzie, Wayne’s sister as Emilie is in the same boat. Suzie was concerned that mom wasn’t eating & sleeping in her room a lot. Tried to explain she tired & doesn’t want to deal with anything. She saud “mom needs a haircut!” I said no she doesn’t. It’s not important at this point. I’m watching all 3 kids be in denial about what’s going on. It’s ok I’ll be here when I’m needed.

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